Phantom healthcare for ‘real’ diseases: when will ME/CFS and long Covid get parity?
Historically, medicine has had a problem with women, especially those who were not married. Sounds unrealistic? The nineteenth century wasn’t ...
Tag: ME/CFS
Grieving for loss of life: the untold ME/CFS – from silent, darkened rooms
In silent darkened rooms where millions lie, the world turns unaware of profound loss of life. myalgic encephalomyelitis (ME/CFS) is ...
It’s Gastroparesis Awareness Month – yet we need to talk about EDS and ME/CFS
August is Gastroparesis Awareness Month. However, two conditions gastroparesis is often found in are also often overlooked: EDS and ME/CFS. ...
Maeve’s inquest was a whitewash and the coroner betrayed everyone living with ME/CFS
On Friday 9 August, the inquest into the death of very severe myalgic encephalomyelitis (ME/CFS) patient Maeve Boothby O'Neill concluded ...
This Severe ME Day, patients are still dying in hospitals as the world walks by
Another year, another Severe Myalgic Encephalomyelitis (ME/CFS) Day will pass with NHS hospitals abusing, neglecting, and psychologising patients living with ...
After the NHS failed Maeve, on Severe ME Day campaigners will call for an NHS protocol
Thursday 8 August is Severe myalgic encephalomyelitis (ME/CFS) Day. And this year, grassroots ME organisations will launch a new campaign ...
A major ME charity shared an article gaslighting Maeve after her death
It’s the second week of an inquest into the death of Maeve Boothby O’Neill. In 2021, the 27-year-old died of ...
One sentence from the coroner accidentally summed up why the NHS failed Maeve
It has been day three of the inquest into the death of Maeve Boothby O'Neill, who died of myalgic encephalomyelitis ...
Maeve Boothby O’Neill’s inquest has already highlighted how little doctors understand ME/CFS
Monday 22 July was the start of an inquest into the death of a young woman with myalgic encephalomyelitis (ME/CFS). ...
For South Asian women, it’s not just medical gaslighting that pervades their ME/CFS diagnoses
Shehla Ali from About M.E. looks at the racism and discrimination that pervades healthcare for South Asian women living with ...
A decade of advocacy fighting for ME/CFS has left me angry and frustrated
As part of the Canary and the Chronic Collaboration's Amplify training programme, founder of ME Foggy Dog and Stripy Lightbulb ...
It’s 2024, and yet there’s still no general election for ‘ME’
It doesn't really matter who gets elected during this years general election for the 1.9 million people living with long ...
A council is promoting a junk science exercise programme for long Covid patients
A council in Northamptonshire has launched a recovery scheme for people living with long Covid. However, the 12-week long Covid ...
Quack science the ‘Lightning Process’ strikes the chronic illness community again – this time, long Covid
The BBC has exposed how an insidious group of predatory charlatans have been gaslighting long Covid patients. It revolves around ...
A groundbreaking community-led conference is set to shake up the scene for people with long Covid and ME/CFS
A groundbreaking international and community-driven long Covid and myalgic encephalomyelitis (ME/CFS) conference - 'Unite To Fight' - is about to ...
Australia’s state and services are trapping a woman living with severe ME/CFS in domestic abuse
A woman living with severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australia is desperately appealing for help to leave an ...
Biomedical research funding into ME/CFS abysmal, so a campaign is calling on YOU to take action
A new campaign seeks to shake up the dire state of funding for biomedical research into myalgic encephalomyelitis (ME). In ...
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