Rushed Off My Feet: a poem describes living with ME/CFS
Living with myalgic encephalomyelitis (ME/CFS) is physically devastating - but the social isolation that comes with it is often less...
I'm a 66-year-old mother of four adult children, and an ex-lecturer.
Very occasionally, and unpredictably, I have been able to do a short walk or two each week, be driven to stay in a friend's spare bedroom and manage a couple of short trips out in the week, and my neighbour invites me for Sunday lunch, but this is an ordeal.
My life is meticulously paced. I can tolerate company for very brief periods... thank goodness my children understand this when they phone or come to stay as my stamina is so poor. They take over everything to help me find a bit of social energy.
I was awarded my work ill health pension, ESA and PIP and use the money on a cleaner and gardener. I live alone and far prefer it that way as I suffer with very bad air hunger.
I am naturally bubbly, lively minded and happy. I have a few very simple hobbies and enjoy a lot of life through my children. But I feel very ill for hours each day, and maybe have a total of three relatively comfortable hours. It's not enough.
Living with myalgic encephalomyelitis (ME/CFS) is physically devastating - but the social isolation that comes with it is often less...
The Canary
PO Box 71199
LONDON
SE20 9EX
Canary Media Ltd – registered in England. Company registration number 09788095.
For guest posting, contact [email protected]
For other enquiries, contact: [email protected]
The Canary is owned and run by independent journalists and volunteers, NOT offshore billionaires.
You can write for us, or support us by making a regular or one-off donation.
© Canary Media Ltd 2024, all rights reserved | Website by Monster | Hosted by Krystal | Privacy Settings